The Coalition for Compassionate Care of California (CCCC) promotes high-quality, compassionate care for everyone who is seriously ill or nearing the end of life.
Our vision is to create a community where people explore their wishes for care towards the end of life, express these wishes, and have their wishes honored.
Our goal is to transform healthcare so that medical care is aligned with individual patient’s preferences—that people get the care they need and no less, and the care they want and no more.
CCCC is an interdisciplinary partnership of thought-leaders from healthcare systems and organizations, government agencies, consumer organizations, and the general public.
Through advocacy, education, and resource development, we’re working to ensure organizations and communities have the information, resources, and tools to expand palliative care across the continuum of care.
We need a coalition, a movement, a critical mass. We need to work together so that the whole is greater than the sum of its parts. We need to come together to develop resources for policy and communication. We need to improve our communication–to patients and families, health care providers, government, and the public.
–Victor J. Dzau, President, National Academy of Medicine (NAM), in remarks at the NAM meeting on Assessing Progress in End-of-Life and Serious Illness Care, May 23, 2016
Children’s Hospice & Palliative Care Coalition
The Children’s Hospice & Palliative Care Coalition (CHPCC) became a division of CCCC in 2015. This strategic unification combined two of the nation’s leading nonprofits dedicated to promoting access to high-quality compassionate care for all who are seriously ill or nearing the end of life. Read more about this collaboration.
WHAT WE DO
California has always been a highly diverse and innovative state. The Coalition for Compassionate Care of California is building on that foundation to change the way we care for people with serious illness.
Our activities include:
- Advance Care Planning Initiative: CCCC works with local coalitions throughout the state to engage the public in advance care planning, and with healthcare professionals to make conversations about the end of life a regular part of providing care.
- Consulting Services: Our consulting service works with healthcare organizations to design effective and cost-efficient customized advance care planning solutions that result in a quality experience for patients, families and healthcare teams.
- Pediatrics: We partner with state and community leaders to develop programs that meet the important day-to-day needs of kids and their families. We create opportunities for doctors, nurses, families and community leaders to talk together about the issues that matter most, and work together to create collaborative networks to ensure that when children go home from the hospital they and their families have access to the care they need to be safe and comfortable at home. The programs we create and policies we advocate for not only benefit children, but also the families who love and care for them.
- Public Policy: Changing the model for end-of-life care involves not only families and healthcare providers, but also public policymakers. We track legislation and educate policymakers on issues that increase access to palliative medicine and quality, compassionate care.
- Palliative Care: As the voice of palliative care in California, we incubate and disseminate models and ideas to improve access to quality care for all people.
- POLST: CCCC is the home for POLST (Physician Orders for Life-Sustaining Treatment) in California, and we work closely with more than 25 POLST coalitions in communities throughout the state to spread its use. As a result of this robust, grassroots collaborative approach, we have seen successful implementation of POLST statewide. Learn more at caPOLST.org.
- Education: CCCC leads efforts to train healthcare professionals on POLST and advance care planning, as well as on cultural congruency at the end of life. We help providers develop the skills they need to talk with seriously-ill patients and families facing decisions about goals of care at the end of life.
- Annual Palliative Care Summit: In 2018 we will host our 10th annual palliative care summit. Each year this conference convenes hundreds of leaders including physicians, nurses, social workers, nursing home administrators, chaplains, policymakers and patients interested in clinical research, quality, and policy as it applies to palliative care.
- Resources: We have nearly 20 years of experience creating a range of educational materials for the public and for providers. These resources have undergone expert review to ensure accuracy and accessibility, and many materials are available in multiple languages.