9th Annual Summit

MARCH 13-14, 2017

The Coalition for Compassionate Care of California and leaders in the palliative care community listened to, learned from, and engaged with inspiring innovators and thought leaders who are taking palliative care to the next level.

*Videos of available sessions coming soon.*

Keynote & General Sessions

Title Speaker(s) Session Description
KeynoteHow Palliative Care Will Heal Medicine Eric Cassell, MD, MACP Following a heritage of two centuries, the contemporary profession of medicine is primarily focused on the diagnosis and cure of disease. And for the past century, it has been increasingly dominated by science and technology. The result of this trend is a belief that medicine is a science marked by impersonality and objectivity, with doctors trained in and devoted to both. Dr. Eric Cassell will take us on a journey to discover how doctors—and equally all caregivers—came to understand the inadequacies of the medicine they had been taught, and returned to understanding the centrality of their historically primary goal: the relief of suffering. He will explore how these lessons will effectively change and improve the contemporary profession of medicine and lead us back to the goal of relieving suffering. No slides were used in this presentation.| Presentation Video
We Can Do It! Palliative Care as a Social Movement Judy Thomas, JD Every major improvement in public health has been advanced by an accompanying social movement. Just think about the millions of lives positively impacted through improved maternity care, seat belt laws, smoking regulations, AIDS care, and the changing public perception about organ donation. Social campaigns urging us to “Buckle Up for Safety” or “Donate Life” are messages to move the public to action. Today, our aging population is ballooning just as uncertainties surrounding the Affordable Care Act are on the rise. Caring for our elders and the seriously ill is at a tipping point for action—and the time to transform our health care system to better care for these people is now. Learn how the Coalition for Compassionate Care of California is ready to spur a new phase in the palliative care movement. Presentation PDF | Presentation Video
The Road Unpaved: When Young Adults Become Engaged Patients Devon Dabbs; Charlie Blotner; Rachael Goldring This is a unique opportunity to hear from a thoughtful panel of young adults who are living with life-threatening conditions and navigating the transition into adulthood. During this interactive Q&A session, panelists will talk candidly about their personal experiences receiving medical and palliative care, share what matters most to them and what they want clinicians to know when caring for adolescents and young adults. Attendees will be able to ask questions of the panel in a safe, supportive and nonjudgmental environment. No slides were used in this presentation. | Presentation VideoClaire Wineland’s Video
Not Whether…But How: Reframing Our Relationship to the Inevitable B.J. Miller, MD We are all mortal, and it is inevitable that each of our lives will one day come to an end. BJ Miller, MD, has come face-to-face with this certainty. Dr. Miller takes us on a journey to consider how our personal and professional identities are linked to elements needed to change the culture of providing health care, and reconsider the role mortality plays in our own lives. Presentation PDFPresentation Video
Special Session | A New Kind of Heroism Jessica Nutik Zitter, MD, MPH In this session, Dr. Zitter will describe a new type of heroism which she encountered in the early 2000’s while serendipitously brushing up against the burgeoning palliative care movement. In this new heroism, the patient or their surrogate are encouraged to participate instead of being treated as passive victims, and clear and honest communication rule over fantasy and avoidance. Join us in discussing this new approach to heroism, and the transformative capabilities it could have on our treatment of the dying. Slides are not available for this presentation. | The film, Extremis, is available on Netflix.
Public Policy & Palliative Care in California Jennifer Kent, MPA As the recent election has shown us—change is everywhere. Ms. Kent will help us understand the current landscape of California’s state policy on health care and how the focus on palliative care is intended to help patients receive care consistent with their values and choices. No slides were used in this presentation. | Presentation Video
How Does Palliative Care Fit Into the Health Insurance Model? Assuring Palliative Care Services for People with Serious Illness N. Marcus, Thygeson, MD; Judy Thomas, JD; Jill Mendlen; James Mittelberger, MD, MPH Relieving suffering, in all its many forms, is the goal of palliative medical care. Generally, medical care is considered part of health benefit plans and insurance products. But how does palliative care fit into the health insurance model? This panel will describe how the California Advanced Illness Collaborative—a new statewide collaborative founded through a partnership between Blue Shield of California and the Coalition for Compassionate Care of California—is working to create a common language for palliative care services and to test a model of insurance payers working with palliative care providers. The panel will describe the collaboration model and consider opportunities and challenges to creating a common language to ensure payers and providers work together to relieve suffering. No slides were used in this presentation. | Handout PDF | Presentation Video
Relief of Suffering and the “Community of Caring” Betty Ferrell, RN, PhD, FAAN In this session, Dr. Ferrell delivers a vision for how a “community of caring” can transcend the needs of all patients and families, and how palliative care team members weave together the person-centered response needed to provide the best care. Presentation PDF | Presentation Video

Breakout Sessions

Title Speaker(s) Session Description
Grassroots Palliative Care: Fully Engaging our Communities J. Redwing Keyssar, RN, BA; Michael D. Fratkin, MD; Susan A. Barber Our “community” includes where we live, work and play—which means community-based palliative care can be so much more than pain and symptom management outside of a hospital setting. The next frontier in palliative care is breaking down the barriers to palliative care access through education—to consumers and payors—about the meaning and importance of palliative care. Presenters in this session will share the successes and challenges of several innovative community-based palliative care programs, including advance care planning outreach initiatives, volunteer trainings, mortality discussions and palliative care lectures. Presentation PDF
Improving the Quality of Palliative Care: Lessons from Collaborative QI Steven Pantilat, MD, FAAHPM, MHM; Kara Bischoff, MD; Angela Marks, MSEd Measuring quality is essential for helping palliative care programs grow, become sustainable, and improve patient care—and it is increasingly necessary to meet payment reforms under the current terms of the Affordable Care Act. The Palliative Care Quality Network (PCQN) is a network of 80 hospitals developing tools and resources to help meet the needs of palliative care providers for data collection, reporting, and quality improvement. In this session, presenters will discuss the lessons learned from three specific quality improvement projects and share best practices for continued quality improvement. Presentation PDF
Prognosticating for Adverse Outcomes Using Palliative Care Daniel R. Hoefer, MD If there is one thing on which we all agree, it’s that palliative care needs to move further upstream in the healthcare continuum, and the care we provide must be consistent with the goals of the patient and family. In this session, Dr. Hoefer will showcase how to guide elderly patients and families through decision-making processes to balance the risks and benefits of hospitalization or surgery. He will also examine how we can prognosticate for patient-centered quality metrics before adverse outcomes occur—such as hospital-induced delirium, functional decline and hospitalization associated disability. Presentation PDF
A Learning Collaborative to Improve Home-Based Care for Children Debra Lotstein, MD, MPH; Allison N. Soeller, PhD Despite increasing access to home-based palliative care services for families and children with life-threatening illnesses, community-based hospice care services are still lacking for pediatric patients. Children’s Hospital Los Angeles is filling the void and meeting the needs of their community through their Pediatric Hospice and Palliative Care Learning Collaborative. Learn how to replicate this model and discuss strategies and lessons learned to improve care for children in your community. Presentation PDF
Defining, Evaluating & Articulating Social Work in Pediatric Palliative Care Danielle Jonas, MSW; Jori Bogetz, MD; Marta Friedman, LCSW, JD, ACHP-SW; Heather A.F. Jolly, LCSW, MPH Social workers in pediatric palliative care invest time and undivided attention to patients and families at critical moments of medical decision making. Unfortunately, the nuanced role of pediatric palliative care for social workers has yet to be defined, and many in the field are still finding their way. In this session, presenters will define the scope of practice and unique role of pediatric palliative care social work, identify the challenges faced, and discuss strategies to communicate about and advocate for the need of pediatric palliative care social workers within the pediatric palliative and hospice care teams. End of life and bereavement topics will be emphasized. Presentation PDF
Advancing Palliative Care Through Partnerships & Community Engagement Christine Knutson, RN, MSN; Ryan Hazley, RN, BSN; John W. Tastad, MA; Jennifer Moore Ballentine, MA Learn from the San Diego Coalition for Compassionate Care (SDCCC) as they share their experience and insights in engaging community partners and local stakeholders to advance palliative care across a multidisciplinary spectrum and multimodal platform. The SDCCC will describe the journey of a developing local coalition within the landscape of palliative care in San Diego including: how to identify key players and stakeholders in palliative care innovation and quality improvement within a local community; how to establish partnerships to promote best practices and create a larger impact; and how to build and strengthen bridges for success, develop plans for future growth and form a strategic plan for coalition sustainability. Presentation PDF
Improving the Last Year of Life: Telephonic Palliative Care with Registered Nurse Case Managers Becky Yamarik, MD, MPH, FAAHPM; Romilla Batra, MD, MBA; Jeanette Despal, MPH, RN, CCM In 2013, SCAN HealthPlan—a Medicare Advantage Plan in California and Arizona—launched their Program for Advanced Illness (PAI), a unique case management program to assist patients with multiple, chronic health conditions to manage their symptoms and medications. The program is designed to manage the sickest patients in the last months to years of life. In this session, you will get an inside look at the background data from the PAI, including: the characteristics and qualities of the RN case managers who were hired; the initial training received in palliative care; ongoing training and support; a detailed description of the case manager work; program graduation goals; outcome measures and data; success stories and failures; and lessons learned along the way. Presentation PDF
Unlocking End-of-Life Care Improvement Opportunities Using Public Data Michael Kersten, MPH; Terry Hill, MD, FACP; Anne Kinderman, MD; Heather A. Harris, MD; Kathleen Kerr Optimizing care towards the end of life is a critical component of many population health initiatives. In order to measure and improve its end of life outcomes (e.g., the quality, cost and appropriateness of care), an organization must first know who died, when and where. In 2016, the California Department of Public Health (CDPH) modified the process for releasing California’s Public Use Death Data Files. Cause of death is not included, but matching public data with an organization’s internal files can yield a rich picture of the decedent population’s chronic diseases, the patterns of resource use and cost, and variation among providers. In this session, presenters will describe how Hill Physicians Medical Group and the San Francisco Health Network use CDPH data to evaluate aspects of end-of-life care quality, demonstrate how other organizations can replicate this process to describe their own patients and practices, and use such data to inform strategic planning and quality improvement efforts. Handout PDF
Reaching the Most Vulnerable in Your Community Usnig Home-Based Palliative Care Jeanine Ellinwood, MD; Victoria Carding, LCSW; Rachelle Palm, RN, CHPN Community-based palliative care delivered in the home reaches the most vulnerable patients in the community—patients who are frequently too ill to drive to a clinic, are in need of a palliative care consultation, and are often hospice-appropriate. After first addressing the physical and emotional pain of advanced cancer, COPD, and end-stage cardiac disease, a home-visit allows for a gentle exploration of a patient’s goals for end-of-life treatment and care. This session provides an overview of how the Snowline Hospice & Supportive Care program is able to provide services to vulnerable, often rural, patients and their families through donations and support from the local community, including physicians, the health community, and county partners. Presentation PDF
Harnessing the Power of Telemedicine in Pediatric Palliative Care Ami Doshi, MD, FAAP; Robin Short, RN, BSN; Tuluwalase Ajayi, MD, Kimberly Bower, MD Transporting seriously ill and medically fragile children from home to medical appointments or the hospital results in stressors that adversely affect quality of life. This barrier significantly limits access to specialist palliative care for home-based patients. Learn how Rady Children’s Hospital Home Supportive Care program is using telemedicine to improve access to palliative care physicians for home-based pediatric patients. Presenters will describe the rationale for incorporating telemedicine into palliative care, its proven benefits, expected challenges, and key steps for integrating a successful and sustainable telemedicine program into existing palliative care programs. Presentation PDF

Office Hours

Facilitator Topic
Eric Cassell, MD, MACP, Physician & Author Suffering and Healing
Charlie Blotner & Rachael Goldring, e-Patient Scholars Pediatric Patients as Engaged Young Adults
Lael Duncan, MD, Coalition for Compassionate Care of California
Alicia Wagnon, JD, California Medical Association
Thoughts on the California End of Life Option Act: The first year
Jessica Nutic Zitter, MD, Highland Hospital
Dawn Gross, MD, PhD, University of California, San Francisco
DeathEd:Using Interactive Media to Transform the Taboo
Kelley Queale, Coalition for Compassionate Care of California POLST eRegistry
Michael Fratkin, MD, Resolution Care TelePalliative Care
Sandy Chen Stokes, RN, MSN, Chinese American Coalition for Compassionate Care Engaging the Chinese-American Community
Teri Boughton, MHA, Consultant to California’s Senate Committee on Health Public Policy & Palliative Care
Cameron Svendsen, MSW, LCSW, Palliative Care Alliance Palliative Care vs. Hospice
Terri Warren, Providence TrinityCare Hospice
Sandee Wishon, RN, MS, CHPN, Hospice by the Bay
Community-Based Palliative Care and Hospice for Pediatric Patients
BJ Miller, MD, University of California, San Francisco Reframing Mortality…What’s Next
Julie Boudreau, Independent Healthcare Consultant The Road Ahead: A local engagement toolkit
Terri Warren, Providence TrinityCare Hospice
Sandee Wishon, RN, MS, CHPN, Hospice by the Bay
Pediatric Concurrent Care
Lael Duncan, MD, Coalition for Compassionate Care of California Communication Skills for Speaking with Seriously Ill Patients
Q & A with e-Patient Scholars Leveraging Engagement with the Patient Voice

Continuing Education Information (CEUs and CMEs)

Type Details
Nursing Provider approval by the California Board of Registered Nursing. Provider Number CEP 15403 for 12 contact hours.
Social Work Provider approved by the California Association of Marriage and Family Therapists, Provider #91987, for 12 contact hours.
Nursing Home Administrators Approved by the Nursing Home Administrator program for 12 hours of continuing education credit – NHAP #CEP1735. CCCC is an approved NHAP provider.
Chaplains This program may be used for continuing education credit for chaplains certified with the Board of Chaplaincy Certification Inc.
Physicians This Live activity, CCCC 8th Annual Summit – Ignite. Inspire. Innovate. Taking Palliative Care to the Next Level, with a beginning date of 05/12/2016, has been reviewed and is acceptable for up to 12.25 Prescribed credits by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Program (PDF)

Compassionate Care
Leadership Award winners

Susan Keller, MA, MLIS
Organization Award:
Benioff Children’s Hospital Oakland Pediatric Palliative Care Program
Innovator Award:
Sandy Chen Stokes, RN, PHN, MSN

Event photos

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California Health Care Foundation

CSU Institute for Palliative Care
California Medical Association
Partnership HealthPlan of CA
Elder Care Management of Northern California, Inc.
Elder Pages Online, LCC
FiveStar Bank
George Mark Children’s House
Hospice By the Bay
INSYS Therapeutics, Inc.
LeadingAge California
Lightbridge Hospice & Palliative Care/Lightbridge Medical Associates
SCAN Health Plan
Sharp Hospice Care
Snowline Hospice