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We’re excited to announce that we’ve been approved for a $48,839 Eugene Washington PCORI Engagement Award to expand patient engagement in all aspects of our Annual Palliative Care Summit (CCCC Summit), including planning, implementation, participation, and the dissemination of information presented and produced at the Summit. We feel strongly about including patient voices in the Summit, and our e-patient program allows us to do just that. This grant from PCORI will allow us to bring more e-patients to the event, as well as offer support for them to use the experience to further educate their communities about palliative care.

CCCC 9th Annual Palliative Care Summit

Aimed at providers caring for people of all ages—children, adolescents, teenagers, young adults, adults and seniors—the CCCC Summit provides education and  best practices to advance a movement to expand knowledge of and access to palliative care.

“There is growing scientific consensus that palliative care improves patient-centered outcomes, increases value, and may even prolong life,” said Judy Thomas, JD, CEO at the Coalition for Compassionate Care of California. “By involving a new generation of engaged and empowered patients in the Summit, we will create a unique experience allowing for patients to work as partners with clinicians to advance a shared vision for palliative care.”

As part of this Engagement Award, 10-15 patients will be selected as “e-Patient Scholars” and receive scholarships to support their full participation in the CCCC Summit. Scholars will have opportunities to inform Summit content, submit posters, showcase artwork, develop and conduct and/or participate in specific sessions, serve as presenters, and broadly share information learned about palliative care with their networks. Clinicians and other attendees will have numerous opportunities to interact and dialogue with the Scholars and develop new research, projects or practices based on patient-informed palliative care questions or priorities. 

“By involving patients in the design and implementation of the Summit, clinician attendees will be able to increase their understanding of the patient experience of advanced illness and palliative care,” said Shirley Otis-Green, MSW, ACSW, LCSW, OSW-C, clinical director of consulting services and project lead for the PCORI award.

CCCC’s project and the other projects approved for funding by this program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI’s engagement goals and objectives, as well as program criteria. Get more information about PCORI’s funding to support engagement efforts.

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.

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