Posted on: August 30, 2017
Written by: Coalition for Compassionate Care of California
The Patient-Centered Outcomes Research Institute (PCORI) announced their recent grant awards—approving nearly $74 million to fund studies on strategies for delivering effective palliative care. These grants show not only an interest in palliative care at a national level, but of the seven studies funded, two are centered in California. California often leads the field when it comes to research and implementation in the field of palliative care.
“This research will address an essential health care need: the effective and efficient delivery of palliative care,” said PCORI Executive Director Joe Selby, MD, MPH. “With our aging population, there is an increased demand for these services and an urgent need to understand the best ways to provide them. The comparative clinical effectiveness research, or CER, that PCORI was established to fund will fill critical gaps in our knowledge and ultimately help people make better informed decisions about palliative care that fit their needs and preferences.”
Studies funded in California include $14 million to Kaiser Foundation Research Institute to compare physician-led versus nurse-led delivery of home-based palliative care. This study will look at each model to see which is the most effective at improving outcomes important to patients and their families, including short-term symptom improvement and more days at home in the last six months of life. Additionally, a project out of UCLA was granted $8.4 million that focuses on patients with cancer or heart or lung disease and advance care planning. The project will examine which of three methods, initiated during primary care visits, is most effective at encouraging patients to complete advance directives.
At Coalition for Compassionate Care of California (CCCC), we’re excited to see this funding coming to California and focusing on two of our core interests: palliative care and advance care planning. Judy Thomas, CEO of CCCC says, “The PCORI grants for palliative care are an indicator of attention being paid to services patients need. We’re looking forward to seeing the information these studies provide and how we can use it to continue our mission to create a community where people explore their wishes for care towards the end of life, express these wishes, and have their wishes honored.”
CCCC is an official partner with both Kaiser Foundation Research Institute and UCLA on these grants. We’ll be serving as advisers and helping lead the patient advisory committee portion of the work.