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The Coalition for Compassionate Care of California has published a Pediatric Palliative Care (PPC) Waiver Transition Resource Guide under a grant from the California Health Care Foundation (CHCF). The guide was developed in response to California’s January 1, 2019 transition for the provision of pediatric palliative care services from a waiver program to a pediatric palliative care Medi-Cal state benefit. This resource is intended to support managed care plans and providers as they navigate this change and to ensure a smooth transition for the pediatric members being served under the waiver.

CCCC worked closely with the Department of Health Care Services (DHCS), Medi-Cal managed care plans, pediatric palliative care providers, and numerous clinicians and other stakeholders throughout the state to create the Resource Guide.

Who should use this online resource guide?

  • Home health and hospice agencies currently delivering pediatric palliative care or those who have an interest in developing a pediatric palliative care program
  • Medi-Cal Managed Care Plans (MCPs)
  • Referring providers
  • Coalitions or organizations supporting or representing children who may benefit from pediatric palliative care
  • Anyone looking to better understand pediatric palliative care – i.e. state health care departments, payers, community stakeholders, etc.

The tool provides guidance on understanding adult and pediatric palliative care, member referral and PPC eligibility, and developing benefit and payment options for PPC.  An extensive FAQ section answers some of the tougher questions asked by plans and providers planning for the PPC transition in California, addressing everything from EPSDT to CCS to proper PPC training.

To go hand-in-hand with the Resource Guide, CCCC created a webinar on the PPC Transition in California, presented by Devon Dabbs. Devon is the founder of the Children’s Hospice and Palliative Care Coalition (CHPCC), which has been a division of CCCC since 2015. She has extensive  knowledge of pediatric palliative care, and her work, together with CCCC’s, has been instrumental  in developing a palliative care benefit in the state.

For more information about the Resource Guide, contact CCCC’s Program Director of Pediatric and Adult programs, Anna Garzon.

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