8th Annual Summit

MAY 12-13, 2016

The Coalition for Compassionate Care of California and leaders in the palliative care community listened to, learned from, and engaged with inspiring innovators and thought leaders who are taking palliative care to the next level.

Keynote & General Sessions

Title Speaker(s) Session Description
KeynoteLet Patients Help: How doctors, nurses, patients and caregivers can partner for better care “e-Patient” Dave deBronkart e-Patient Dave chose his slogan – “Let patients help” – carefully. It’s not that doctors are bad or health care corrupt. Rather his message is about enabling, empowering, engaging and equipping patients to play an active role in their health care. e-Patient Dave believes that rich conversations await us as patients and providers alike shift away from the paternalistic past and toward the shared responsibilities of participatory medicine. Presentation PDF | Watch Dave’s talk, “I’m gonna live, live, live until I die”
The 10-Year Roadmap: Taking palliative care to the next level Judy Thomas, JD A look at the current status of palliative care and advance care planning in California and CCCC’s 10-year vision for creating the future we all want. Presentation PDF
Payer-Provider Experiences: Challenges in providing access to community-based palliative care Kate O’Malley, RN, MS, CHPN; Robert Moore, MD, MPH; Linda Gibson, BSN, MBA; Gwendolyn Kaltoft, RD, EdD; Torrie Fields, MPH; Brook Calton, MD, MHS; David Zwicky, FACHE Payers and providers are figuring out how to create the best model to provide access to quality community-based palliative care. In this panel you will learn about initiatives to bring palliative care to both Medi-Cal (through SB 1004) and commercially- insured patients. Presentation PDF
Technology & Advance Care Planning: A scalable catalyst for change Aretha Delight Davis, MD, JD Technology has played a role in revolutions and social movements throughout the U.S. and around the world. Within this context, Dr. Davis will explore the role of technology in medical decision making and end-of-life care, discussing guiding principles, building blocks, outreach to different constituencies and barriers we’ll face in the years to come. Presentation PDF
How Palliative Care Fits into Trends in Health Care Sandra Hernández, MD Palliative care increases patient and family satisfaction, improves quality of life and has been shown to extend survival. Dr. Hernandez will discuss how expanded access to palliative care fits into the new and highly competitive healthcare market. Presentation PDF
Keynote | The Dream of a Common Language: Towards a shared reality for patients and medical teams Katy Butler Palliative care is only starting to develop a common language, understandable by patients and families, to express the changing realities of illness and death in an era of high-tech medicine. Doctors hoping to facilitate shared medical decision making may unwittingly use terms that families find frightening, abandoning or mystifying. In this personal retelling of her parents’ desires for “good deaths” and their conflicts with their doctors, author and former family caregiver Katy Butler will help you develop and refine a poetic, honest, “kitchen table language” to better serve and understand patients. Presentation PDF | Handout PDF
ACP and PAD: How physician aid-in-dying will (or won’t) change our conversations Jennifer Ballentine, MA; Nathan Fairman, MD, MPH; Karl Steinberg, MD, CMD, HMDC Regardless of one’s ethical views on physician aid-in-dying (PAD), its availability as an option may affect many advance care planning (ACP) conversations. Now that PAD is a reality in California, healthcare professionals, and physicians in particular, may find themselves faced with questions with which they are not familiar or comfortable answering. What information do we as ACP facilitators and experts need to have in order to answer questions, explore requests, and refer patients to appropriate resources? How can we manage personal viewpoints and ethical commitments that may clash with those of patients seeking our advice? Presentation for this session not available by request of presenters.
Ethical Communication: What is it and how do I practice it? G. Jay Westbrook, RN, MS, CHPN While many clinicians have learned the basics of communication, few have learned the Principles of Ethical Communication. Using case-studies and humor, Mr. Westbrook will show how to quickly establish trust and rapport; minimize defensive reactions; avoid patient manipulation based on clinician biases; respond in, rather than react to, a situation; improve clinical outcomes and increase patient satisfaction. Handout PDF

Breakout Sessions

Title Speaker(s) Session Description
What Gives Your Life Meaning: A young adult-focused palliative care campaign Sharon Hamill, PhD, Veronica Anover, PhD, Rocio Guillen-Castrillo,
PhD, Colleen Moss, PhD, Catherine A. Matsumoto, PhD, Caroline Boaz, RN, MSN, ACNS-BC, ACHPN, and Eileen Piersa, MS, MA, CSU San Marcos
Learn how CSU San Marcos took up the challenge of educating its students through the “What Gives Your Life Meaning” campaign, a six-week campus-wide campaign designed to increase students’ knowledge of palliative care and advance care planning. Presenters will also outline the steps to engage emerging adults in discussions about end-of-life care. Presentation PDF
Delivering Palliative Care Across the Continuum: A patient-focused healthcare system’s story Lorellen Green, MD, MemorialCare Medical Group; Louise Della Bella, RN, MN, ACNS-BC, NEA-BC; and Oswald Jauwena, NP, Saddleback Memorial Medical Center Hear how MemorialCare Health System in Southern California is transforming its palliative care services. The program now offers services across the entire continuum of care, including a palliative care at-home program serving patients of south Orange County. MemorialCare looked at other successful programs in the region and then worked to educate all levels of the organization, from direct practitioners in the hospital to medical offices in the community. Presentation PDF
DASH: Innovative Urgent Care Services at Home Jeanne West, RN, MHA, Doctors Assisting Seniors at Home (DASH) In California as well as nationwide, statistics reveal that seniors often use hospital emergency rooms (ER) for what is considered routine or urgent care. Doctors Assisting Seniors at Home (DASH), a program funded by the Affordable Care Act, has decreased ER visits by an astounding 40% among the older adults it serves! Learn how the DASH program has made a dramatic improvement in the lives of seniors, often avoiding a health crisis, by facilitating better care and better health. Presentation PDF
Are You Being Served? Addressing the medically underserved in our community Michael Demoratz, PhD, LCSW, CCM Frequently, our western-based approach to healthcare delivery is “one size fits all.” We will explore how we can expand access to quality end-of-life care to the medically underserved, culturally diverse populations with specially tailored messaging. It begins with information on advance care planning and patient/family goals of care in a culturally sensitive and linguistically accurate manner. This makes it possible to move forward with aligning treatment plans with patient and family expectations for care. Presentation PDF
Effective Integration of Spirituality in Palliative Care Stephen Peterson, MDiv, Seasons Hospice & Palliative Care of LA; Donald Koepke, MDiv, BCC, California Lutheran Homes; and Cordula Dick-Muehlke, PhD, Cordula Cares We are becoming increasingly aware of the important role spirituality can play in the well-being of older adults. This workshop will provide a view of spirituality that can be used by all practitioners with all patients – religious or non-religious, cognitively aware or challenged, as well as adherents of all faith traditions. Presenters will explore the potential for spiritual growth that can come with aging and coping with serious illness, and will challenge participants to rethink their own views about spirituality and older adulthood. Presentation for this session not available by request of presenters.
Deconstructing Diversity: Focus on LGBTQ inclusion Tim Vincent, MS, California Prevention Training Center Explore key issues related to diversity that impact the provision of care in, and management of, long-term care facilities. Recognizing that diversity can include many factors, such as race, ethnicity, sexual orientation, gender identity, religion, and more, this interactive session will offer recommendations to improve the management of staff and improve the care of residents in this changing culture. This workshop will focus specifically on considerations for building knowledge, skill and sensitivity to provide care for LGBTQ (lesbian, gay, bisexual, transgender, queer) community members. Presentation PDF
Blending Alternative Pain & Symptom Management with Traditional Pediatric Palliative Care David Sine, MD, Valley Children’s Hospital, Tulare Pediatric Hospice and Hinds Hospice Pediatric Program This workshop will examine recent clinical data and family testaments regarding the use of various alternative treatments including CBD/THC blends and their increasing potential in pediatric palliative care. It will also explore the pharmaceutical and legal issues related to accessing these medications.
Implementing Community-Based Palliative Care in a Managed Care Environment Jill Mendlen, LightBridge Hospice; and Marvin Gordon, MD, Health Net of California LightBridge and Health Net have worked together to develop a community-based palliative care program for Health Net’s most clinically complex members. Hear how community-based palliative care is being provided to a select group of Health Net’s sickest, most expensive and often most marginalized members living in the San Diego region. Presenters will discuss contract development, patient identification, tracking of metrics and the operational approach required to achieve successful communication and program operations within the managed care provider relationship. Presentation PDF
Palliative Care: Between patient autonomy and clinician responsibility Alain Durocher, PhD and Sarah Lee, MD, Kaiser Permanente – – Downey Medical Center As clinicians, we tend to “present the facts” to patients with the goal of giving patients freedom to choose their own goals of care and treatment preferences. Based on real case studies, this session will address how two major ethical principles clash with one another and interfere with this concept when considering palliative care. Presentation PDF
Palliative Care in Skilled Nursing Shelly R. Garone, MD, FACP, Kaiser Permanente – North Sacramento Valley While the goal of skilled nursing care is to maintain residents’ mental and physical function, learn how many of the principles and practices of palliative care are compatible with this goal and can be incorporated into nursing care. These include advance care planning, pain and symptom management, attention to emotional and spiritual well-being, and support to families. Presentation PDF
Building Palliative Care: Organization and people first, clinical second Helen McNeal, BBA, CSU Institute for Palliative Care Whether you are an MD, RN or administrator, if your organization is looking at palliative care or trying to make it work, join this session for a guided tour of what it takes to build a successful program. Using the Palliative Care Roadmap, we’ll walk you through what you need to develop your own plan for success. This session will give you the tools to build your program to maximize success… and minimize stress. Presentation PDF
Being Mortal: Using “Being Mortal” to spark community advance care planning Julie Boudreau, advance care planning community engagement specialist; Veva Arroyo, Sharp Palliative & Hospice Care; and Pauline Le, MSW, Family Caregiver Resource Center In 2015, a documentary based on Atul Gawande’s best-seller “Being Mortal” aired on public television stations nationwide. Following this showing, the California HealthCare Foundation and the John and Wauna Harman Foundation funded 39 local organizations across California to host community screenings of the documentary. Learn about this exciting project including audience reactions and connecting with underserved communities. Plus, find out about holding a Being Mortal screening in your community. Presentation PDF
The Family Perspective: Interactive Q&A with adolescents living with a life-threatening condition and their caregiving parents Anna & Debra Zeldin, and Michael & Rachel Goldring In order to serve families best, we must know what is important to them. This workshop is a unique opportunity to intimately interact with a panel of adolescents living with life-threatening conditions and their caregiving parents. Participants will be able to ask questions of the panel in a safe, supportive and non-judgmental environment. No slides were used in this presentation.
Building Confidence Levels for Adult-Trained Nurses Caring for Children Sandee Wishon, RN, MS, CHPN, Hospice by the Bay/By the Bay Kids Providing hospice services to children in adult-focused programs can be challenging. This session will focus on ways to build confidence, competency and comfort levels from both an agency and staff point of view, and discuss the rewards and challenges of caring for children and their families at the end of life. No slides were used in this presentation.

Office Hours

Facilitator Topic
Jaclyn Manzanedo, CTBS, Donor Network West Donate Life
Aretha Delight Davis, MD, JD, ACP Decisions Using Videos as Part of Advance Care Planning
Kelley Queale, Coalition for Compassionate Care of California Advance Care Planning Billing
“e-Patient” Dave deBronkart Engaging Patients in Advance Care Planning
Teri Colett, ACSW, LCSW, ACHP-SW, CSU Stanislaus Patients in Denial
Christine Wilson, RN, JD, Tyler & Wilson, LLP Mediation Techniques
Tim Vincent, MS, California Prevention Training Center Working with Diverse Populations
Teri Boughton, MHA, Consultant to California’s Senate Committee on Health Public Policy & Palliative Care
Cameron Svendsen, MSW, LCSW, Palliative Care Alliance Palliative Care vs. Hospice
John Tastad, SCC, Sharp HealthCare National Healthcare Decisions Day (NHDD) Efforts
Terri Warren, Providence TrinityCare Hospice, and Sandee Wishon, RN, MS, CHPN, Hospice by the Bay Models of Payment for Pediatric Palliative Care/Building a Sustainable Pediatric Hospice Program
Daniel Hoefer, MD, Sharp HealthCare Cognitive Decline and Advance Care Planning
Lael Duncan, MD, Coalition for Compassionate Care of California Communications Skills for Speaking with Seriously Ill Patients
Delia Cortez, LCSW and Jeannie Meyer, NP, Santa Monica-UCLA Medical Center and Orthopaedic Hospital; Kylee Harding, MPH, UCLA Health Systems Advance Care Planning for the Homeless
Linda Healy, FNP, AHPN, and Joshua Hammer, MSW, MA, Motion Picture & Television Fund Palliative Care Across the Continuum
Nathan Fairman, MD, MPH, UC Davis Department of Psychiatry and Behavior Sciences Psychiatric Dimensions of Palliative Care
Julie Boudreau, Independent HealthCare Consultant Engaging Faith Leaders
Katy Butler, writer, author, teacher Slow Medicine
Aretha Delight Davis, MD, JD, ACP Decisions Working with ACP Decisions
Jennifer Ballentine, MA, The Iris Project Physician Aid-in-Dying
G. Jay Westbrook, RN, MS, CHPN, Compassionate Journey Emotion Fatigue
JoAnne Auger, RN, CHPPN, and Kimberly Bower, MD, FAAHPM, HMDC, Rady Children’s Hospital; Denise Hess, BCC-HPCC, LMFT, HealthCare Chaplaincy Network and CSU Institute for Palliative Care Combatting Compassion Fatigue in Pediatric Providers | Resources PDF

Continuing Education Information (CEUs and CMEs)

Type Details
Nursing Provider approval by the California Board of Registered Nursing. Provider Number CEP 15403 for 12 contact hours.
Social Work Provider approved by the California Association of Marriage and Family Therapists, Provider #91987, for 12 contact hours.
Nursing Home Administrators Approved by the Nursing Home Administrator program for 12 hours of continuing education credit – NHAP #CEP1735. CCCC is an approved NHAP provider.
Chaplains This program may be used for continuing education credit for chaplains certified with the Board of Chaplaincy Certification Inc.
Physicians This Live activity, CCCC 8th Annual Summit – Ignite. Inspire. Innovate. Taking Palliative Care to the Next Level, with a beginning date of 05/12/2016, has been reviewed and is acceptable for up to 12.25 Prescribed credits by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Program (PDF)

8th Annual Summit Program Cover

Download the program for the 8th Annual Summit


Compassionate Care
Leadership Award winners

Gary Johanson, MD
Organization Award:
Threshold Choir
Innovator Award:
Kate O’Malley, RN, MS, CHPN

2016 e-Patient Delegates

Learn about our inaugural class of e-Patient delegates.

  • Elizabeth Bailey, MA
  • Cindy Chmielewski
  • MarlaJan DeFusco
  • Kathy Kastner
  • Debra Zeldin

Event photos

See event photos on Facebook



California Health Care Foundation

Kaiser Permanente

John and Wauna Harman Foundation

Sharp Hospice Care

Providence Trinity Kids Care

California Culture Change Coalition

CSU Institute for Palliative Care
Kindred Healthcare
LightBridge Hospice & Palliative Care
OnePoint Patient Care
AARP California
ACP Decisions
Alzheimer’s Orange County
Comfort Cub
George Mark Children’s House
LeadingAge California
SCAN Health Plan
Transcend Translations