The Children’s Hospice and Palliative Care Coalition (CHPCC) is a division of the Coalition for Compassionate Care of California. Through CHPCC, we’re leading the way in offering solutions that make a difference for seriously ill and dying children.
2019 PEDIATRIC WEBINAR SERIES
The 2019 Pediatric Webinar Series is presented in collaboration with Pennsylvania’s Pediatric Palliative Care Coalition (PPCC) and Greater Illinois Pediatric Palliative Care Coalition (GIPPCC).
February 21, 2019: Don’t You Forget About Me: Caring for Siblings
Presenters: Yelena Zatulovsky & Dana Richmond
“Who is coming for me today?” When there is a chronically and/or terminally ill child, siblings become accustomed to the focus placed on the sick child by the adults around them. They are often silent sufferers and disenfranchised grievers because, within the context of this scenario, their place is poorly defined. Even more so, most clinicians are not equipped to support the siblings within the family unit. This webinar will highlight the experiences of siblings, as told by the siblings themselves, and will examine the evidence-based interventions, strategies, and obstacles towards an effective framework of support that empowers and honors siblings.
Upcoming Pediatric Webinars
March 19, 2019: Building Resilience in Children and Caregivers coping with Serious Pediatric Illness
Presenter: Abby Rosenberg, MD, MS, MA
April 16, 2019: Creative Conversations: Advance Care Planning in Pediatrics
Presenter: Kathy Perko & Debbie Lafond
May 23, 2019: Providing Spiritual Care with Pediatric Patients
Presenter: Rev. Travis C. Overbeck
June 20, 2019: Ensuring Psychosocial Wellness in School and the Community for the Seriously Ill Child
Presenter: Kathy Davis, PhD, MSED
July 18, 2019: The Care of Adolescents and Young Adults with Life-Threatening Illness
Presenter: Jennifer Mack, MD, MPH
September 19, 2019: Pain Management for Children with Serious Illness in the Context of the Opioid Epidemic
Presenter: Stefan Friedrichsdorf, MD, FAAP
October 17, 2019: An Expense Worth Expressing: The Role of Expressive Arts in Pediatric Palliative Care
Presenter: Debra Lotstein, MD, MPH
November 21, 2019: Compatible with Life: Rethinking Care of Children with Trisomy 18
Presenter: Nicole Hahnlen & Deana Deeter
Past Webinars/Recordings
January 22, 2019: Managing Pediatric Seizures at End of Life
Presenter: Melissa Hunt, PharmD, Pediatric Clinical Pharmacist, Optum Hospice Pharmacy Services
[Webinar recording coming soon]
2018 Webinars
December 6, 2018: Deep in the Weeds: Medical Marijuana and Pediatric Palliative Care
Presenter: Elissa Miller, MD, DuPont Hospital for Children
View webinar recording
November 13, 2018: Getting a Better Handle on Parents’ Bereavement: Supporting parents anticipating their child’s death and afterward
Presenters: Blyth Lord, EdM & Nancy Frumer Styron, JD, PsyD
View webinar recording
September 25, 2018: Transitioning Adolescents into Adult Care
Presenter: Parag Shah, MD
View webinar recording
June 21, 2018: Approach to Neurologic Symptom Management in Children at End of Life
Presenter: Audrey Foster-Barber, MD, University of California San Francisco
View webinar recording
May 15, 2018: Concurrent Care: Pediatrics and complex care plans
Presenter: Shayna Stiles & Brandy O’Brien, NP, TrinityKids Care Team, California
View webinar recording
April 17, 2018: Perinatal Palliative Care
Presenter: David Munson, MD, Children’s Hospital of Philadelphia
View webinar recording
March 20, 2018: Kids Needs Care Too! Developing collaborations, competencies and confidence to care for kids
Presenters: Jody Chrastek, RN, & Diane Knust, LCSW, Fairview Home Care and Hospice, Minnesota
View webinar recording
February 20, 2018: Decision Making in Pediatric Palliative Care
Presenter: Scott Maurer, MD, Children’s Hospital of Pittsburgh
View webinar recording
January 23, 2018: Addressing the Spiritual Needs of Children
Presenters: Elisha Waldman, MD, Lurie Children’s Hospital of Chicago|
View webinar recording
These pediatric-focused webinars are also available from CCCC:
October 2017: Little People, Big Pain: Overcoming Obstacles to Pain Management in Children
Presenter: Melissa Hunt, PharmD, Pediatric Clinical Pharmacist, Optum Hospice Pharmacy Services
View webinar recording
February 2016: Courageous Conversations: What Clinicians Need To Know About Palliative Care & Advance Care Planning For Children & Young Adults
Presenter: Claire Vesely, RN, BSN, CHPPN, Palliative Care Coordinator, UCSF Benoiff Children’s Hospital Oakland
View webinar recording
POLST for Pediatrics
Conversations about end-of-life care are never easy, especially when the care concerns a seriously ill child.
The Children’s Hospice & Palliative Care Coalition (CHPCC), together with the Coalition for Compassionate Care of California, developed a curriculum that teaches clinicians how to have sensitive, meaningful end-of-life care discussions with parents about their child.
Released in 2012, the curriculum guides doctors, nurses, and other providers in using a POLST (Physician Orders for Life-Sustaining Treatment) form to record parents’ wishes for their child’s care in the final days of life.
Interested?
Contact us to join the interest list for POLST for Pediatrics.
