e-Patient Ambassadors

The Coalition for Compassionate Care of California (CCCC) is building upon our previous patient-engagement efforts by recruiting, training and empowering patient ambassadors for palliative care. CCCC has received a Eugene Washington PCORI Engagement Award from the Patient-Centered Outcomes Research Institute® (PCORI®) to support the Ambassadors project.

CCCC has recruited a cohort of five socially-active patients with serious illness (e-Patients) or their caregivers to serve as palliative care advocates within their disease-specific patient-advocacy organizations and social networks.

The e-Patient Ambassadors project is part of a portfolio of projects approved for PCORI funding to develop a skilled community of patients and other stakeholders from across the entire health-care enterprise and to involve them meaningfully in every aspect of PCORI’s work.

Our Goal

The goal of the e-Patient Ambassadors project is to educate disease-specific advocacy organizations about palliative care and encourage these organizations to integrate the key principles of palliative care and advance care planning into the organizations’ regular activities and make sharing information about palliative care with their members and constituents a priority.

Our Ambassadors

Our e-Patient Ambassadors are equipped, empowered and engaged in their health and health-care decisions, which allows them to be equal partners in their care with the health professionals and health systems that support them.  Meet our e-Patient Ambassadors >>

About Palliative Care

Palliative care is specialized health care for people with serious illnesses. Although palliative-care services are appropriate at any stage in a serious illness, and can be provided concurrently with curative treatments, many patients are unaware of the benefits of palliative care and may be reluctant to accept them. Supporting the integration of the key principles of palliative care into the messaging of existing advocacy organizations is hoped to drive consumer awareness (and ultimately consumer demand) for palliative-care services.

Background

This project builds on our work in 2016 with e-Patients, funded by the John and Wauna Harman Foundation, to develop relationships with the engaged patient community and identify ways to together in a campaign to expand the conversation about death and dying in the e-Patient community and make advance care planning a part of everyday life.

The e-Patient Ambassadors project is funded through Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award #8621-CCCC. For more information about PCORI’s funding to support engagement efforts, please visit http://www.pcori.org/content/eugene-washington-pcori-engagement-awards/.

About PCORI

The Patient-Centered Outcomes Research Institute® (PCORI®) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.  Learn more: http://www.pcori.org/content/eugene-washington-pcori-engagement-awards/

Interested in more information on our e-patient work?

Project Contact:

Kristine Wallach, Project Manager
(916) 779-7501
kwallach@coalitionccc.org