In our work, the Coalition for Compassionate Care of California has encountered circumstances where a person with a developmental disability was not supported to understand and exercise the choices s/he has, the results of healthcare decisions, the process and the consequences.
These circumstances include troubling reports of disabled people:
- Who were cut off from friends and people they are close to at the end of their lives,
- Had no choices in receiving painful and invasive procedures that undermined the quality of the end of their lives,
- Have died in a hospital despite a preference to be at home, and
- Even instances where the disabled person’s wishes about where to be buried and who should receive their belongings after their death were disregarded.