The Coalition for Compassionate Care of California (CCCC) plays a unique and vital role in improving care for seriously ill Californians. We understand that changing the model for serious illness care involves not only healthcare providers and systems, patients and families, but also public policy makers. Policy, legislation, and regulation provide the necessary infrastructure on which to build better processes, systems, and outcomes.
Policy and Legislation
To accomplish our mission—to promote high-quality, compassionate care for all seriously ill Californians—CCCC engages in a variety of activities such as tracking legislation and educating policy and law makers for changes that increase access to palliative medicine and ensure quality, compassionate care.
Activities Include:
- Serving as a resource for policy makers who want accurate, objective information about good end-of-life care;
- Providing our members with the latest information on state legislation and policies related to palliative medicine and serious illness care;
- Convening thought leaders around key topics and initiatives; and
- Creating and promoting opportunities for members to engage with high-level decisions.
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National Healthcare Decisions Day
On April 16, join Americans across the country and talk to others about your future healthcare decisions – and complete your advance directive! Learn more at National Healthcare Decisions Day.
Resources
Stay up to date with the latest data and information regarding advance care planning, palliative medicine, and serious illness care. The following resources highlight some of the recent reports and research done on these topics.
Palliative Care Consensus Standards and Guidelines
Clinical Practice Guidelines for Quality Palliative Care, 4th Ed. | National Consensus Project and National Coalition for Hospice and Palliative Care (2018)
California Advanced Illness Collaborative Standards | Coalition for Compassionate Care of California (CCCC) and Blue Shield of California (2017)
Reports
California’s Palliative Care Evolution — Executive Summary (PDF)| California Health Care Foundation (2023)
2020 Edition — Long-Term and End-of-Life Care in California | California Health Care Foundation (2020)
Making the Case for Inpatient Palliative Care | California Health Care Foundation (2022)
Making the Case for Outpatient Palliative Care | California Health Care Foundation (2022)
Evaluating Fiscal Outcomes for Outpatient Palliative Care | California Health Care Foundation (2023)
Help Wanted: Californians’ Views and Experiences of Serious Illness and End-of-Life Care | California Health Care Foundation (2019)
Research
Studies of Home-Based Palliative Care Economic Outcomes (PDF) | CCCC (2022)
“Doing More With the Same: Comparing Public and Private Hospital Palliative Care Within California” | Carin van Zyl et al. (2022, June 29). Journal of Palliative Medicine, 25, 7: 1064–1071
“Economics of Palliative Care for Hospitalized Adults With Serious Illness: A Meta-Analysis" | Peter May et al. (2018, June 1). JAMA Internal Medicine, 178, 6: 820–829
“Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-Analysis” | Dio Kavalieratos, et al. (2016, November 22/29). Journal of the American Geriatrics Society, 316, 20: 2104–2114
"Changes Over Time in POLST Use and Content by Race and Ethnicity Among California Nursing Home Residents" | David S. Zingmond, et al. (2023). Journal of the American Geriatrics Society, 71, 9: 2779–2787
"Care Preferences in Physician Orders for Life Sustaining Treatment in California Nursing Homes" | LA Jennings, et al. (2022). Journal of American Geriatrics Society, 70, 7: 2040–2050.