Decision Aids for Healthcare Providers

As a healthcare professional, having a conversation about goals of care and life-sustaining treatments with seriously ill patients of all ages and their loved ones can be difficult. Decision Aids, available for adults and pediatrics, are an educational series designed by the Coalition for Compassionate Care of California (CCCC) that explain the complex topics of potentially life-sustaining treatments, using consumer-friendly language with evidence-based information. The Aids were developed with the help and guidance of healthcare professionals, and reflect the latest research on these interventions.

No decision aid replaces the conversation patients should have with their clinicians to make important, clinical decisions. Use of these decision aids carries no liability to its developers or to CCCC.

Recommendations

The Aids are recommended for use by healthcare professionals who treat seriously ill patients in hospitals, palliative care units, skilled nursing facilities, hospices, and clinic settings.

What Users Are Saying

"These materials are very well written. They have enough medical content, and it is described in a very user-friendly way for the non-medical person. The design invites the person in, and they want to read them."

"The CCCC materials are more clearly and directly written. They actually talk to the reader, rather than sounding like they come from a public relations office."

"I feel having [these materials] come from outside [my organization] is beneficial as some people feel that we are trying to save money by having them make these decisions."

TOPICS INCLUDE: artificial hydration, cardiopulmonary resuscitation (CPR), mechanical ventilation (ventilator), and tube feeding (artificial nutrition).


Online Store

Decision Aids are available for purchase in packs of 25 through CCCC's Online Store.

The Aids are recommended for use by healthcare professionals who treat seriously-ill patients in hospitals, palliative care units, skilled nursing facilities, hospices and medical groups. The Aids are intended to supplement conversations between patients and healthcare providers.

Video: Is A Ventilator Right For You?

CCCC has produced a short, consumer-friendly video on ventilator use which can be shared along with the Ventilator Decision Aid. (YouTube)


Samples In English

Click the thumbnails to view sample aids.

Samples In Chinese

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Samples In Spanish

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Samples In Korean*

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Samples In Vietnamese*

Click the thumbnails to view sample aids.

Sample Pediatric Decision Guides

Click the thumbnails to view sample guides.

Credits

The adult Decision Aids were developed by Mary Cadogan, DrPH, RN, GNP, Professor of the University of California, Los Angeles School of Nursing. Literacy content and accessibility was drafted by Rebecca Sudore, MD, Assistant Professor of Medicine at University of California, San Francisco, and was expertly reviewed by academics, POLST physician champions, hospice physicians, social workers, and other experts. Institute for Healthcare Advancement (IHA), an organization that focuses on health literacy, provided consultation on the layout, design and illustration of the Aids.

The Pediatric Decision Aids were developed by Robin Kramer, RN, MS, PNP, coordinator of the Pediatric Palliative Care Program, University of California, San Francisco; Devon Dabbs, CCCC Vice President of Pediatric Programming & Education; and Leslie Adams, MSW, of the Children’s Hospice and Palliative Care Coalition. The Aids were reviewed by academics, pediatricians, social workers, and family advisory panels.

Decision Guides were made possible by a grant from the California Health Care Foundation.

Adult Decision Aids were updated in 2018 and copyright in 2018, Coalition For Compassionate Care Of California. All Rights Reserved.

Pediatric Decision Aids are copyright 2016, Coalition for Compassionate Care of California. All Rights Reserved.
* These Decision Guides were last updated in 2014.