End of Life Option Act Information for Healthcare Professionals

 

Key Information About the End Of Life Option Act for Healthcare Professionals

Message to Providers: The Coalition for Compassionate Care of California (CCCC) has prepared responses to the most commonly asked questions concerning provider participation in the California End of Life Option Act. These responses highlight important actions required of participating providers. This information is offered strictly as guidance on provisions in the legislation and is not specific methodology for provider participation.

Forms available from the California Department of Public Health (CDPH) are required under the law, and familiarity with these forms may assist both healthcare providers and patients to comply with the process. CCCC recommends healthcare professionals review all forms, especially the “Attending Physician Follow-up Form,” to ensure all required information is collected, documented, and submitted.

Nothing on this web page is intended to be, and should not be interpreted as, specific medical or legal advice regarding this complex piece of legislation and related medical and ethical issues. This information may serve as a guideline for providers who are seeking general information about participation in the California End of Life Option Act.

Under the law, healthcare entities, including health systems and facilities, are required to formulate policies detailing their participation or nonparticipation in the California End of Life Option Act. Such policies must be posted on the entity’s public-facing website and must be provided on employment or contract and annually to any employed or contracted healthcare provider. These policies will provide the most specific, relevant guidance to you in your practice. 

 

What are the obligations of an attending physician?

What are the responsibilities of the consulting physician?

Who can serve as a consulting physician?

What is involved in the mental health assessment?

Who is considered a mental health specialist?

Who can serve as a mental health specialist?

Which physicians can prescribe medical aid-in-dying drugs?

Do Medicare’s CPT codes for advance care planning cover discussions related to medical aid-in-dying?

What forms are required and where do I get them?

How do I submit the forms?

How will cause of death be reported?

What are the best practices regarding POLST forms for patients who choose medical aid-in-dying?

Where can I find education and training on the End of Life Option Act?

Where can I find publications and articles on the End of Life Option Act?

 

What are the obligations of an attending physician?

Under the law, an attending physician is the physician who has primary responsibility for:

  • The health care of the requesting patient AND
  • Treatment of the requesting patient's terminal disease

Before prescribing medical aid-in-dying drugs, an attending physician must make an initial determination of whether a patient is qualified to receive medical aid-in-dying drugs. 

New in 2022, physicians who do not participate in the End of Life Option Act are required to tell the patient they do not participate and transfer the patient’s medical records to another provider at the patient’s direction. Providers are prohibited from engaging in false, misleading, or deceptive practices relating to their willingness to qualify an individual or provide a prescription for medical aid-in-dying drugs to a qualified individual. Physicians may document the patient’s first oral request in the medical record, but this provision in the law will not be enforced, due to a lawsuit that successfully argued that such documentation could constitute “participation” in the Act.

Finally, healthcare entities are required to provide their institutional policies regarding medical aid in dying to all contracted and employed professionals on contract or employment and annually, and to post their current policy regarding medical aid in dying on their public-facing website.

On receiving a request for medical aid-in-dying drugs, the attending physician must first determine that the individual is eligible under the law. The physician must determine that the individual:

  • Is an adult (18 years of age or older)
  • Is a California resident (CA driver’s license or other state-issued ID, proof of ownership or lease of property in CA, CA voter registration, prior year CA income tax return)
  • Has an incurable and irreversible terminal disease with a prognosis of 6 months or less
  • Has the capacity to make medical decisions
  • Is making an informed decision
  • Is making a fully voluntary request for medical aid-in-dying drug, without coercion or undue influence
  • Is physically and mentally able to self-administer medical aid-in-dying drugs, meaning a conscious and physical act of administering and ingesting the drugs to bring about death
  • Has submitted the signed, dated, witnessed request form

The attending physician must receive two oral requests from the patient directly and not through a designee, a minimum of 48 hours apart, and the written request. The law does not specify when the written request should be submitted. 

All written and oral requests must be recorded in the patient’s medical record. (There is no specific language required in the documentation.)

The attending physician must refer the patient to a consulting physician.

The attending physician must refer the patient to a mental health specialist if indicated.*

The attending physician must counsel the patient about the importance of:

  • Having another person present when the medical aid-in-dying drugs are ingested
  • Not ingesting the drugs in a public place or place open to public view or access
  • Notifying next of kin of their request for medical aid-in-dying drugs (such notification is not required)
  • Participating in a hospice program
  • Maintaining the medical aid-in-dying drugs in safe and secure location until self-administered

*A mental health specialist assessment is indicated for the purpose of determining that the patient has the capacity to make medical decisions and is not suffering from impaired judgement due to a mental disorder. Under the law, a mental health specialist is defined as a psychiatrist or psychologist.

At the time of counseling, the attending physician must remind the patient that they may rescind their request for medical aid-in-dying drugs at any time in any manner. 

To confirm that the patient is making an informed decision, the attending physician must discuss the following with the patient:

  • The patient’s diagnosis and prognosis
  • The risks associated with taking the medical aid-in-dying drugs
  • Probable result of taking the medical aid-in-dying drugs
  • The possibility that the patient may at any time choose not to obtain the medical aid-in-dying drugs or may obtain the drugs and choose not to take them
  • Feasible alternatives or additional treatment options, e.g., comfort care, hospice care, palliative care, pain control

The attending physician must comply with all documentation requirements and submit all necessary forms.

In addition, the attending physician must:

  • Offer the patient an opportunity to withdraw/rescind the request before prescribing the drug
  • Verify the patient is making an informed decision immediately before prescribing the medical aid-in-dying drugs
  • Confirm all requirements are met and that appropriate steps are carried out before prescribing the medical aid-in-dying drugs
  • Fulfill all documentation requirements
  • Complete the Attending Physician Checklist & Compliance Form, obtain the Consulting Physician Compliance Form, and a report from the Mental Health Specialist if consulted, place the forms in the patient’s medical record, and submit copies of the forms and report, if submitted, and the Patient’s Written Request to the California Department of Public Health (CDPH) within 30 days of writing the prescription

The Attending Physician Follow-Up Form must be completed within 30 calendar days of the patient’s death. A copy of the form must also be submitted to CDPH. This form must be completed and signed by the attending physician.

What are the responsibilities of the consulting physician?

The consulting physician must:

  • Examine the patient and their medical records
  • Confirm in writing the diagnosis and prognosis of the patient and determine that the individual has capacity to make medical decisions and is making an informed decision
  • Refer to a mental health specialist if indicated*
  • Fulfill the documentation requirements for consulting physicians
  • Complete the Consulting Physician Compliance Form and submit it to the attending physician

*A mental health specialist assessment is indicated for the purpose of determining that the patient has the capacity to make medical decisions and is not suffering from impaired judgement due to a mental disorder. Under the law, a mental health specialist is defined as a psychiatrist or psychologist.

 

Who can serve as a consulting physician?

consulting physician must be independent from the attending physician. (Note: The law does not define “independent.”)

consulting physician must:

  • Be qualified by specialty or experience to make a diagnosis and prognosis regarding the patient’s terminal disease
  • Not be a witness to a patient’s written request
  • Not be related to a patient by blood, marriage, registered domestic partnership, or adoption, or be entitled to a portion of the patient’s estate upon death

 

What is involved in the mental health assessment?

If the attending or consulting physician determines the patient may have a mental disorder that is interfering with the patient’s ability to make medical decisions, the physician must refer the patient for an assessment by a mental health specialist

The mental health specialist’s assessment is solely intended to confirm that the patient has capacity to make medical decisions and is not suffering from impaired judgement due to a mental disorder.

If a patient is referred for this assessment, a prescription for medical aid-in-dying drugs cannot be issued unless and until a mental health specialist determines the patient:

  • Has capacity to make medical decisions
  • Is not suffering from impaired judgment due to a mental disorder

 

Who can serve as a mental health specialist?

A mental health specialist is defined in the law as a psychiatrist or licensed psychologist. A mental health specialist must be independent from the attending physician. (Note: The law does not define “independent.”)

The mental health specialist must:

  • Not be a witness to a patient’s written request
  • Not be related to a patient by blood, marriage, registered domestic partnership, or adoption, or be entitled to a portion of the patient’s estate upon death

 

Which physicians can prescribe medical aid-in-dying drugs?

Only a physician who meets the statutory definition of "attending physician" may prescribe medical aid-in-dying drugs.

Under the law, an attending physician is the physician who has primary responsibility for:

  • The health care of the requesting patient AND
  • Treatment of the requesting patient’s terminal disease

 

Do Medicare’s CPT codes for advance care planning cover discussions related to medical aid-in-dying?

For billing purposes, check with the related payer for the patients. California’s Medi-Cal program has agreed to provide coverage and reimbursement for physicians providing End of Life Option Act services (see APL 16-006). The Medi-Cal advance care planning codes may be appropriate–check with your billing services.

Because federal law does not permit expenditure of federal funds on medical aid-in-dying, it is possible End of Life Option Act services are not reimbursable under the Medicare CPT codes for advance care planning. For Medicare Advantage enrollees it is advised to check with the patient’s health plan.

 

What forms are used and where do I get them?

Forms and instructions on submitting the forms are available through the California Department of Public Health (CDPH).

The End of Life Option Act requires various forms.

Provider Forms:

Patient Forms:

 

 

How do I submit the forms?

The attending physician is responsible for assembling and submitting documentation related to medical aid-in-dying to the California Department of Public Health (CDPH).

Within 30 calendar days of writing a prescription for medical aid-in-dying drugs, the attending physician must submit the following completed, signed, and dated forms to CDPH:

Within 30 calendar days of a qualified patient’s ingestion of the medical aid-in-dying drugs obtained under the terms of the Act, or death from any other cause, whichever comes first, the attending physician shall submit the Attending Physician Follow-Up Form.

There is no set form for the mental health specialist’s assessment report, but documentation of the assessment should also be submitted to CDPH by the attending physician.

The forms can be sent to the California Department of Public Health.

 

How will cause of death be reported?

This “All County Letter” from the California Department of Public Health provides information regarding accurate reporting on the cause of death on the California Certificate of Death when a person uses medical aid-in-dying drugs to end their life, as authorized by the End of Life Option Act.

Download the letter as a PDF

 

What are the best practices regarding POLST forms for patients who choose to participate in medical aid-in-dying?

All patients approaching the end of life should discuss their preferences for end-of-life care, complete an advance directive, appoint a healthcare agent or select a surrogate, and complete a POLST form to protect those wishes.

For patients choosing medical aid-in-dying, a POLST form should be completed to reflect choices consistent with their wish to actively end their life. For those patients we recommend selecting:

A: Do Not Attempt Resuscitation

B: Comfort-Focused Treatment

C: No Artificial Nutrition

 

Where can I find education and training on the End Of Life Option Act?

The Coalition for Compassionate Care of California does not take a position on the End of Life Option Act, but we are experts in helping healthcare professionals learn how to have quality conversations with patients about serious illness, choices in end-of-life care, life-sustaining treatments, advance directives, and POLST.

For Healthcare Professionals:

California End of Life Option Act (Coalition for Compassionate Care of California) $49 (Free to CCCC members)
This webinar provides an insightful overview of the End of Life Option Act, patient eligibility requirements, ethical considerations, and a look at the demographics on how this option is used in areas of the country where similar legislation is in place.

The webinar also covers approaches to communicating with patients about treatment choices in the setting of life-limiting illness.

For Health Systems, Medical Practices And Others:

The CCCC can bring a customized training to your organization. Learn more here.

 

Where can I find publications and articles on the End of Life Option Act?

A number of organizations have published information related to the End of Life Option Act.

Reports/Statistics

California Department of Public Health: Annual Reports on utilization of medical aid-in-dying

Overview/Guidance

The following may be relevant to CCCC members: